Via a well-known German journal for parents, we got the first six addresses of families concerned, and during the following year the number of the addresses increased due to propaganda to fifteen. These persons met first in 1993 and it was decided to meet one another regularly every year. After a third meeting we decided to found support group - the first one in Germany. It was founded on February 10th, 1996.

How to become a member of the group?

For further information please contact one of the following addresses:

1. Vorsitzende:	2. Vorsitzender:	Kassierer:	Schriftführer:
Ulrike Anders-Kokegei	Kurt Nee	Dieter Hiltscher	Tina Lübcke
Holzwickeder Straße 101a	An der Kirchschule 11	Drei Eichen 1	Schulenburgstr. 2
44309 Dortmund	26871 Papenburg	74248 Ellhofen	26129 Oldenburg
Tel.0231/722 59 54	Tel.04961/919620	Tel. 07134/17629	Tel. 0441 36149051
Fax 0231/200 94 12	Fax 04961/919630	Fax 07134/901993	Fax. 0441 36149053
Bankverbindung: Kreissparkasse Heilbronn (BLZ 620 500 00) Kto. 013 635 589
Medizinische Fragen zu SWS:	Pamela+Jost Hilgenberg